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‘You’re treated like this is the end’: Meet the dementia rebels – diagnosed and determined to change people’s minds
Few things are more feared than a dementia diagnosis. Now people living with the condition are fighting against damaging stereotypes and demanding proper medical support When Maxine Linnell, 78, a retired psychotherapist living in Leicestershire, learned that she had dementia four years ago, the diagnosis proved less challenging than some people’s reactions. “What was striking was how many people’s attitudes changed almost immediately … they stop seeing you as a person and see only dementia, some professionals included. Like this is the end and everything after will be devastating.” The assumption that you go overnight from diagnosis to late-stage dementia isn’t confined to family and friends. Julie Hayden, a nurse and social worker from Yorkshire, was diagnosed nine years ago at the age of 54, long after sensing that something was wrong but being constantly told that it was depression o
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Few things are more feared than a dementia diagnosis. Now people living with the condition are fighting against damaging stereotypes and demanding proper medical support When Maxine Linnell, 78, a retired psychotherapist living in Leicestershire, learned that she had dementia four years ago, the diagnosis proved less challenging than some people’s reactions. “What was striking was how many people’s attitudes changed almost immediately … they stop seeing you as a person and see only dementia, some professionals included. Like this is the end and everything after will be devastating.” The assumption that you go overnight from diagnosis to late-stage dementia isn’t confined to family and friends. Julie Hayden, a nurse and social worker from Yorkshire, was diagnosed nine years ago at the age of 54, long after sensing that something was wrong but being constantly told that it was depression o
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What happened
According to The Guardian’s source item, ‘You’re treated like this is the end’: Meet the dementia rebels – diagnosed and determined to change people’s minds, Few things are more feared than a dementia diagnosis. Now people living with the condition are fighting against damaging stereotypes and demanding proper medical support When Maxine Linnell, 78, a retired psychotherapist living in Leicestershire, learned that she had dementia four years ago, the diagnosis proved less challenging than some people’s reactions. “What was striking was how many people’s attitudes changed almost immediately … they stop seeing you as a person and see only dementia, some professionals included. Like this is the end and everything after will be devastating.” The assumption that you go overnight from diagnosis to late-stage dementia isn’t confined to family and friends. Julie Hayden, a nurse and social worker from Yorkshire, was diagnosed nine years ago at the age of 54, long after sensing that something was wrong but being constantly told that it was depression o
Context
The development sits in VINI’s Global file for readers following international affairs, institutions, conflict, diplomacy, economics, and cross-border consequences. The original report is linked so readers can check the source account, follow later updates, and compare new coverage against the first published record. The source item is dated 2026-06-09T04:00:45+00:00.
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Source
Primary source: ‘You’re treated like this is the end’: Meet the dementia rebels – diagnosed and determined to change people’s minds via The Guardian. VINI cites and links the source; it does not reproduce the publisher’s full article text without rights clearance.
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- ‘You’re treated like this is the end’: Meet the dementia rebels – diagnosed and determined to change people’s mindsThe Guardian - 2026-06-09T04:00:45+00:00
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